Pride 2013

I did my best. I had to work an extra day last week so I could have Sunday off for the parade leaving me with one day, Friday, to rest up, clean, do laundry, and prep for the weekend.

I'm grateful I was able to go out and I DID have a good time. But today I'm feeling sad about all the possible social
connections I completely missed. I was using up all my spoons just to be there, to ride, and to stay on my feet. Sadly that doesn't leave much for simple activities like making small talk, getting to know folks in a social environment, volunteering, or chatting across a lunch table. 

If I'd stayed home I probably would have ended up feeling more balanced but also like I was missing out completely. By going I was able to be there, but in a way it showed me how much more I WAS missing out on. This was probably the most epic Pride celebration in SF ever. It was amazing.....just from what I saw, and I didn't even see all that much. 

I also had a yucky flare up of hives on Saturday and Sunday, mostly on the areas that were exposed to the sun. 

I'll probably be calling the allergist tomorrow morning for an appointment. It's a LOT of money but I think I need to try. $250 just for a consult.  Plus testing, bloodwork, possible meds, etc. 

UPDATE: Appointment made with the immunologist for next week. Because of the high doses of antihistamines I won't be able to have any skin testing done, but as I understand it serological allergy testing can be. We'll see. So as of now it's a consultation only, but I was told that it would last about an hour. Hopefully that's enough time to take a through history and to maybe figure out what's going on. My vote now is auto-immune urticaria. http://chronichives.com/what-is-chronic-urticaria/autoimmune-urticaria/   And because I've already gone through multiple treatments with prednisone, it seem like I'm probably a candidate for immunomodulators/immunosuppressant drugs. Who knows how much THOSE drugs cost.....

bah. wishing I had health insurance.......
won't change it, still costs lots of money for health care. ergh.

I'm hopeful for some resolution. Please? Soon?